Life with a 28 week preemie & his miracle sister born & living with an Omphalocele birth defect

Life with a 28 week preemie & his miracle sister born & living with an Omphalocele birth defect

Thursday, April 14, 2011

Ryan & his balance bike

Since getting his balance bike for Christmas, there hasn't been much opportunity to ride it outside since it's been pretty cold the past few months. Luckily, we're now getting some warmer temps so it's time to head outside amungst all the pollen. Ryan's been riding his bike back and forth from our kitchen to the family room..which is not all that big (we live in a townhouse) but he's gotten so good with his balance and now lifts his feet up off the ground. Dean went outside with him after work today so he got a couple videos, he could hardly keep up with Ryan since he was moving so fast.



Wednesday, April 13, 2011

Ryan loves his sister

These days most of the talk around the house is about Ryan's new baby sister. We have shown him all the pictures and videos we have taken and he already loves her. He knows she's in the hospital but we have not taken him to see her. He's at the age that he's starting to get afraid of things. A couple months ago he woke up during a thunderstorm crying and would not go back to sleep in his own bed...so now he's afraid of thunderstorms. I know seeing his sister wouldn't be scary in itself but seeing everything else in the NICU, the machines, other babies, all the noises, might so right now we're holding off taking him to see her. My mom helped him write a card for her and we took that in along with the lovie he helped pick out for her and it's watching over her:


If your following the caringbridge webpage you know the latest on Katelyn so I won't repeat that but yesterday we did get to hold her again and of course I had to put another frilly headband on her..hehe One of the nurses said Katelyn could use it as a garter on her wedding day..ha!


 


Thursday, April 7, 2011

Katelyn Grace!

Katelyn Grace blessed us with her presence Sunday, April 3rd weighing 5 lbs. 13 oz and was 18" long. I was 36 weeks & 6 days...1 day shy of being full term. I'm so thankful to have made it as far as I did though and Katelyn is just such a blessing and a proving that she too is a miracle.


She was born with an abdominal wall defect called an Omphalocele. Her liver, intestine and some bowel are outside of her body contained in a sac. We knew early on about this defect and had many many worries but all we could really do is pray and knew that God had a plan. So far, all tests that have been done on her such as a heart echo, kidney ultrasound and headscan have all come back normal! They started her on a tiny amount (3cc's or ml's which is comparable to a tsp.) of breast milk tonight and as of a couple hours ago, she kept it all down. Hopefully when I call after I write this, they will say, she still kept it down.

I think I will start a Caringbridge webpage for updates and pictures. It's a private website for anyone going through a health situtation. Apparently, once your done updating the site, you can have it printed into a book. I would love that for memory sake. I will try and work on that this weekend. If you'd like me to include you in on the people who can access that page, email me, comment here or if your reading this on FB, send me a message to my inbox.